Popular

Rare or Underdiagnosed

Dysautonomia, Ehlers-Danlos Syndrome, and Related Conditions
2 hours
2026
ACCME
ANCC
ASWB
Nationally Accredited

Improve your ability to recognize and manage dysautonomia, Ehlers-Danlos Syndrome, and related underdiagnosed conditions in clinical practice. This course highlights key clinical features, diagnostic pathways, and practical care strategies to reduce delays and misdiagnosis. Gain tools to support more accurate, timely, and patient-centered care.

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Instant CE reporting
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150+ Accreditations
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Meets state requirements
 Rare or Underdiagnosed

About this course

Rare and underdiagnosed conditions such as dysautonomia, Ehlers-Danlos Syndrome (EDS), and related multisystem disorders are frequently overlooked in clinical practice, leading to delayed diagnosis, misdiagnosis, and fragmented care. This course provides a focused, practical approach to recognizing and managing these complex conditions, equipping healthcare professionals with the clinical insight needed to identify key features, navigate diagnostic challenges, and initiate appropriate referrals. Through real-world case applications and evidence-informed strategies, learners will explore structured clinical reasoning, interdisciplinary care coordination, and patient-centered management approaches. By strengthening awareness and improving diagnostic accuracy, this course supports more timely, effective, and compassionate care for individuals living with rare and underdiagnosed conditions.

What you will learn

At the completion of this activity, healthcare providers will be able to:  

  • Identify at least three hallmark clinical features of Dysautonomia and Ehlers-Danlos Syndrome that differentiate them from more common conditions.
  • Describe the diagnostic criteria and referral pathways for suspected cases of Dysautonomia and hypermobile EDS, including the role of specialist consultation and, where applicable, genetic testing.
  • Explain the impact of diagnostic delay in rare diseases  
  • Summarize the psychosocial and functional challenges faced by patients with rare diseases
  • Distinguish between common subtypes of dysautonomia (e.g., POTS, neurocardiogenic syncope, autonomic neuropathy) using clinical presentation and diagnostic markers.
  • Apply a multidisciplinary care planning approach for patients with hypermobile EDS and dysautonomia, incorporating physical therapy, nutrition, mental health, and specialty referrals.
  • Evaluate at least two systemic barriers to timely diagnosis and care in rare diseases, and propose actionable strategies to reduce bias and improve care equity.

Course content

6
sections
2hr
total length
Rare or Underdiagnosed: Dysautonomia, Ehlers-Danlos Syndrome, and Related Conditions
2 hrs
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Recognizing Rare: Clinical Features of Dysautonomia and Ehlers-Danlos Syndrome
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Preview
17m 15s
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Diagnostic Pathways and Pitfalls: Reducing Delay and Misdiagnosis
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Preview
26m 8s
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Patient-Centered Care in Rare Disease: Communication, Trust, and Advocacy
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Preview
6m 42s
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Structured Clinical Reasoning for Rare and Underdiagnosed Conditions: A Multidisciplinary Approach to Complex Care
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Preview
6m 45s
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Interdisciplinary Collaboration and Referral Strategies for Rare Conditions
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Preview
6m 49s
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Emerging Tools: Telehealth, Genomics, and AI in Rare Disease Management and Case Studies
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Preview
18m 50s

Course details

Release Date:
4/16/2026
Activity Type:
Enduring Material
Expiration Date:
4/16/2029
Activity Format:
Online

Accreditations

This course has been reviewed and approved through the rigorous standards of leading accrediting organizations, ensuring your continuing education credits are formally recognized and respected across professions and states.

ACCME

AMA PRA Category 1 Credits
Accreditation Council for Continuing Medical Education

Accredited for physician continuing medical education

ANCC

ANCC Contact Hours
American Nurses Credentialing Center

Accredited for nursing continuing education

ASWB

ASWB Continuing Education Credits
Association of Social Work Boards

Accredited for social work continuing education

Additional Information

  • Automatic reporting to CE Broker for participating states
  • Instant certificate generation upon course completion
  • Credits accepted for license renewal
  • Meets state requirements for continuing education

Course Faculty

Learn from leading experts who bring their real-world experience and evidence-based practices to this comprehensive training.

Kimberlee Rowett

Kimberlee Rowett

TeleOncology Clinical Manager, Intermountain Health
DNP, MSN, MBA, RN

​​Kim is a freelance healthcare writer focusing on patient and consumer education, putting her 11 years of experience as a nurse, 17 years of experience in healthcare, her master’s degree in nursing, master’s degree in business administration, and doctorate degree in nursing practice to work.

Areas of expertise:
Telehealth
Oncology
Nursing Leadership

Disclosure

Partners requires every individual in a position to control educational content to disclose all financial relationships with ineligible companies that have occurred within the past 24 months. Ineligible companies are organizations whose primary business is producing, marketing, selling, re-selling, or distributing healthcare products used by or on patients.

All relevant financial relationships for anyone with the ability to control the content of this educational activity are listed below and have been mitigated according to Partners policies. Others involved in the planning of this activity have no relevant financial relationships.

  • Kimberlee Rowett, DNP, MBA, MSN, RN, LNC
    •  has no relevant financial relationships with ineligible companies to disclose

Disclosure of Unlabeled Use

This educational activity may contain discussion of published and/or investigational uses of agents that are not indicated by the FDA. The planners of this activity do not recommend the use of any agent outside of the labeled indications.

The opinions expressed in the educational activity are those of the faculty and do not necessarily represent the views of the planners. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings.

Disclaimer

Participants have an implied responsibility to use the newly acquired information to enhance patient outcomes and their own professional development. The information presented in this activity is not meant to serve as a guideline for patient management. Any procedures, medications, or other courses of diagnosis or treatment discussed or suggested in this activity should not be used by clinicians without evaluation of their patient’s conditions and possible contraindications and/or dangers in use, review of any applicable manufacturer’s product information, and comparison with recommendations of other authorities.

Why learn from these experts?

Clinical Excellence

Our intuitive, user-friendly platform removes barriers, allowing you to focus on what matters most: advancing your skills and reaching your goals.

Real-World Experience

Combined 27+ years of direct patient care experience with diverse HIV populations in various healthcare settings.

Education Focus

Dedicated to training healthcare professionals and have developed evidence-based curricula for stigma reduction.

Patient Advocacy

Strong advocates for patient-centered care and have worked extensively with HIV advocacy organizations.

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Product Details

$22.00
2 hours
  • 100% Online. Complete on your time
  • Courses meet state, department, and board license requirements
  • Instant Completion. Certificate sent to you directly
  • Reporting on your behalf to CE Broker
Buy for Group
60-Day Money-Back Guarantee

Satisfaction guaranteed or full refund

Requirements & Compliance

This course meets your continuing education requirements across multiple states and professions, ensuring you stay compliant with the latest regulations.

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Requirements

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Compliance Guaranteed

This course is regularly updated to ensure compliance with current state and federal requirements.

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Accreditations

ACCME

Accreditation Council for Continuing Medical Education

ANCC

American Nurses Credentialing Center

ASWB

Association of Social Work Boards

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150+ Accreditations
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